Tuesday, 29 April 2014

The details

It was a squeaker but we're going home.

Her numbers are not up all that much and the liaison nurse said after that she would not have sent her home yet as this can still be a kind of the honeymoon period before host vs graft can start sometimes but ML told today's doc that the head guy last week said she could go home today so we squeaked through.

We asked again about crowds and this dr explained that even if the ANC and WBC would be in the normal range which they are not even close, it's a part of the WBC that they can't measure that won't function properly for a long while and that while bacterial infections can be treated viral infections not so much.

She could go visit Phil's dad as he is very unwell with his cancer but only attend the wedding that weekend if she could maybe be in a balcony or her own side of the church. It's not just the people that are in a room but who's been in the room before she gets there.

She may have visitors if they are well and going outside is great.

I'm writing this down while I still remember it.

They will do blood tests on pei once a week and she is to call Halifax if she notices:

Mouth sores or sensitivity
Or other changes

as these can be signs of host vs graft. It would not be a bad thing if these things happen, but it's very important that ML report them. Doesn't mean she'd have to rush right back, they just need to know.

She is to go to pei emerge with any fever 38 or higher and start the process of getting her medical alert watch either online or over the 800 number.

She may be around her grand daughter Rebekah of course but the nurse was iffy about the babysitting part which was the hardest thing for ML to hear as she is naturally so looking forward to that.

ML goes back to Halifax for an appoint probably on May 13th.

Hard for them to say how often after that, it all depends on how everything goes. Possibly every 2 weeks for a while and then tapering maybe once a month and maybe as far apart as a year eventually.

So as her friends and family lets keep up the prayers and contact via email and Facebook. She enjoys that very much and is up for individual emails though I will probably still do a regular update in my blog health wise to save her repeating a lot, but please go ahead and contact her too :)

Also she'll be posting info about the relay for life and she'd love if you'd watch for that and sponsor her if you feel like it.

Our friends we made here at the lodge had cards ready for her when we got back!

Philip is here now so time for some serious packing!

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